The Epilepsy Programme Board is made up of young people aged 18-25 years old, parents, and experts who know a lot about epilepsy. They work with doctors and other professionals to make sure children and young people with epilepsy get the best care in the UK.

This year one area of focus for the group has been on how schools and health teams could work together better to ensure children and young people with epilepsy get the right support and are able to do well in their learning, such as through communicating better using tools like an individualised care plan.  

The Epilepsy Programme Board meets three times a year, with a meeting to review papers and prepare before each one. Places are limited and by application only, and generally volunteers stay with the Board for up to three years.